Pallium India Newsletter: November 2011

Pallium India
Care Beyond Cure





         [http://palliumindia.org/newsletter] 

        Imagine… someone has been diagnosed with a terminal illness. Most 
friends stop calling. Eventually one calls to say, " 

_“I PRAY FOR YOU EVERY DAY.”_

" 

        In an article that appeared in The Guardian, the patient then asks, " 

_“EVERY DAY? … DOES YOUR COMPASSIONATE GOD NOT TELL YOU THAT HE’S HEARD YOUR 
PRAYERS BEFORE, TO STOP REPEATING YOURSELF, GET UP OFF YOUR KNEES, PICK UP THE 
PHONE AND TALK TO ME INSTEAD?”_

" 

        When the article appeared on Pallium India blog, Dr Nagesh Simha, 
President of Indian Association of Palliative Care, called it a _“BRILLIANT AND 
THOUGHT-PROVOKING PIECE”_ 

WE AGREE. PLEASE READ ON…

         “I dont know what to say” 
[http://palliumindia.org/2011/10/i-dont-know-what-to-say/] 

        When people find that a friend has been afflicted with a fatal disease, 
most keep away. It is not that they do not care; more often than not, it is 
just plain fear. 

        They do not know what to say if they visit. Therefore it is _easier _to 
keep away. They seldom have any idea of the pain and rejection that the patient 
will feel. 

        In The Guardian’s “What I’m really thinking” 
[http://www.guardian.co.uk/lifeandstyle/2011/oct/21/what-really-thinking-terminally-ill-patient]
 series, a TERMINALLY ILL PERSON speaks out: "

         What I’m really thinking: the terminally ill patient
[http://www.guardian.co.uk/lifeandstyle/2011/oct/21/what-really-thinking-terminally-ill-patient]
 _‘I can count my real friends on the two fingers that I’d like to raise to the 
rest of them’_ 

        Since I was diagnosed as terminally ill this summer, friends have 
rapidly disappeared. I can count my real friends on the two fingers that I’d 
like to raise to the rest of them. It’s hard being friends with someone who’s 
dying, I know – I’ve been in that role myself – but it’s harder being the 
person saddened by the lame excuses for not making contact. 

        These all begin with, “I’m sorry I haven’t been in touch, but…” A text 
from a “friend” of many years told me she’s been “busy, busy, busy”; another 
has been so tired after gardening she hasn’t been able to email. Another 
doesn’t know what to say. Well, how about talking about work, kids, partners, 
politics, weather, what’s on TV – like we used to? 

        Then there’s, “But I pray for you every day.” Every day? Does your 
compassionate God not tell you that he’s heard your prayers before, to stop 
repeating yourself, get up off your knees, pick up the phone and talk to me 
instead? 

        I listen to the excuses and say I understand, but I don’t. The two 
people who have been friends don’t do anything different. They just carry on 
visiting and having a laugh; they keep the emails coming and share their news 
with me, even when I’m not well enough to reply. Do those who’ve made the 
excuses believe what they say, or will they, for my funeral, suddenly find the 
time to attend, weep and say how much they miss me?" 

        All those friends who do not call (because they dont know what to say) 
perhaps could be helped by a bit of education – like reading this article. 

WE HAVE FOR TOO LONG BEEN A DEATH–DENYING SOCIETY THAT ARTICLES LIKE THIS, OR 
DISCUSSIONS ON THE MATTER, ARE SUCH RARE EVENTS!

        - 

BRUCE DAVIS TRAINING CENTRE INAUGURATED 
[HTTP://PALLIUMINDIA.ORG/2011/11/BRUCE-DAVIS-TRAINING-CENTRE-INAUGURATED/] 

         

        We have been so used to working in cramped quarters at Trivandrum 
Institute of Palliative Sciences [http://tipsindia.org] (TIPS), that the 
availability of some space (albeit rented) for our Training Center is such a 
great luxury. Now there is some comfortable space to work in – when the 
volunteers come for their training programs, or when doctors, nurses and other 
professionals come for their six weeks’ courses. (We have six such courses in a 
year). 

         

        And we thought it befitting to name the center after Mr Bruce Davis. He 
funded the construction of the  Institute of Palliative Medicine at Calicut 
[http://www.painandpalliativecare.org/] , and is supporting us as well as 
several palliative care centers in India. He provided the funding for the 
“Bruce Davis Gold Medal” 
[http://palliumindia.org/2011/10/bruce-davis-gold-medal-in-palliative-medicine-2011-apply-now/]
 in Palliative Medicine for young doctors. 

        Bruce is a great human being who does not like to be in the lime light, 
few know him for his great contributions to Palliative Medicine in India, Hong 
Kong, UK and elsewhere. Sorry, Bruce, for putting up all this before the world 
to read, but we thought it important that contributions like yours are better 
known. They would so inspire others! 

         

        The Worshipful Mayor of Trivandrum, Ms K. Chandrika lit the traditional 
lamp at 5.30pm on Tuesday 01 November 2011, thus declaring the training center 
open. Dr Vijayakumar, Professor of Community Medicine at Trivandrum Medical 
College [http://commedtvm.org/] , Dr M. Balakrishnan from S.U.T Hospital 
[http://www.suthospital.com/] , Sri Vijayakumran Nair, founder of Rajeswari 
Foundation [http://rajeswarifoundation.com/] , Dr George Varghese from Ebenezer 
Palliative Care Center and Justice Hariharan Nair were among the dignitaries 
who attended the event. 

         New Indian Express 
[http://expressbuzz.com/states/kerala/A-foreigner’s-noble-gesture-to-alleviate-pain/329042.html]
  and The Hindu 
[http://www.thehindu.com/news/cities/Thiruvananthapuram/article2591936.ece]  
came out with reports on the function, read them below. The one in the New 
Indian Express showed a picture of “Cuckoo”, the boat that Bruce Davis and his 
wife had for 32 years. Sale of the boat had enabled funding the furnishing of 
the training Center. " 

A FOREIGNER’S NOBLE GESTURE TO ALLEVIATE PAIN 
[HTTP://EXPRESSBUZZ.COM/STATES/KERALA/A-FOREIGNER’S-NOBLE-GESTURE-TO-ALLEVIATE-PAIN/329042.HTML]
 

        NEW INDIAN EXPRESS, THIRUVANANTHAPURAM: What was once a boat that 
sailed in the seas of the West, has now become a training centre for doctors 
and nurses in palliative care, in the capital city. ‘Cuckoo’, the sailing boat 
that belonged to UK businessman Bruce Davis and his wife for over 32 years, was 
sold and the proceeds donated to city-based NGO Pallium India for setting up a 
training centre. 

        “Over the years, I have developed an enormous admiration for the 
palliative work done in Kerala and the interest and caring attitude shown by 
literally thousands of volunteers who are associated with this work,” said the 
limelight-shy Bruce Davis in an e-mail. This former businessman from Cornwall, 
in UK, had lost both his father and mother to cancer. Bruce Davis and his 
family members then set up a charitable trust for work related to pain relief 
for cancer patients. 

        “Our medical education is focused on imparting knowledge and skills, 
the head and the hands. What is often missing is the heart, or the attitude. We 
aim to integrate all three at the training centre,” said Dr M R Rajagopal, 
chairman of Pallium India. 

        Incidentally it was this trust that financed the Institute of 
Palliative Medicine in Kozhikode, after Bruce Davis came to know of the 
remarkable work being done there through Dr Robert Twycross from UK, who was in 
India to attend some workshops. Later Bruce Davis got involved with the 
hospitals at Vellore and Guwahati too. 

        “With palliative care attaining the form of a movement in the state, 
many health professionals, not just from other parts of the country but even 
from countries across the world, especially South-East Asia, used to visit us 
to learn and get trained. We never had even a proper workspace for them,” said 
Dr Rajagopal, who has named the centre after the philanthropist as Bruce Davis 
Training Centre. 

        A significant chunk of the training at the centre will be on 
communication, listening to the patient and the family, understanding their 
problems and not just the disease, and giving a person-centered care, attending 
to the psychological, social and spiritual problems of the patients. 

        Apart from this, the course covers the ethics of care, classification, 
assessment and management of pain, use of pain-killers, opioid pharmacology, 
opioid responsiveness, adverse effects, interventions in pain management and so 
on. 

        And the man who loved sailing, but sold the ‘Cuckoo’ for the cancer 
patients in the state wrote:”I have been honoured by working with the workers 
there. I will continue to do what I can as long as I am physically able.”" 

         " 

[HTTP://WWW.THEHINDU.COM/NEWS/CITIES/THIRUVANANTHAPURAM/ARTICLE2591936.ECE] 
PALLIUM-TRAINING 
[HTTP://WWW.THEHINDU.COM/NEWS/CITIES/THIRUVANANTHAPURAM/ARTICLE2591936.ECE] 

        THE HINDU, THIRUVANANTHAPURAM: Pallium India, which has been 
spearheading the palliative care movement in Kerala, has opened the first 
formal Palliative Care Training Centre in the city. 

        The training centre has been named Bruce Davis Training Centre, in 
honour of Bruce Davis, head of a UK-based charity trust, who has been a 
benefactor of the palliative care movement in India for over a decade now. 

        The training centre was inaugurated by the Mayor, K. Chandrika, here on 
Tuesday. 

        “The Medical Council of India had taken a decision in December last to 
begin MD course in Palliative Medicine. While this is a positive development, 
it could be a while before this gets to the implementation stage. The new 
training centre is Pallium India’s effort towards encouraging professional 
education in palliative medicine, the chairman of Pallium India,” M. R. 
Rajagopal, said. 

        “We have decided to name our centre after Bruce Davis, out of our 
affection for this individual, who has been personally involved in the 
palliative care work of Pallium India and has remained a source of great 
inspiration and strength for us,” Dr. Rajagopal said. 

        Bruce Davies had set up his charitable trust in the UK in 1967 and was 
working in the area of cancer care. By the 1980s, the work done by the Trust 
had spread nationally into a most effective force for the relief of pain, both 
physical and mental, for cancer patients and others suffering from terminal 
illnesses. 

        Following the great improvement of cancer care in the UK, the Trust 
decided to use the expertise that they had gained in the home environment for 
the betterment of cancer care services in other countries where such services 
were almost nil. 

        The Bruce Davis’ Trust’s association with the palliative movement in 
Kerala began in the late 1990s when one of the Nurse Consultants of the Trust 
visited Kozhikode. Since then, the Trust has been supporting all activities 
related to the palliative movement in Kerala financially as well by way of 
rendering training to nurses and volunteers. 

        The new training centre set up by Pallium India is intended as a 
national-level centre to train doctors and nurses and to empower NGO 
initiatives in the area of palliative care because formal training facilities 
in palliative medicine is next to nothing in the entire country. 

        The six-weeks’ course which has been planned by Pallium India now will 
devote one-third of the training programme towards pain management while 
another one-third will deal with how psychological and social support should be 
extended to patients as well as addressing issues of rehabilitation. 

        “How should a doctor `listen’ to his patient? Learning to listen to a 
patient and to respond to him/her is something that a doctor working in this 
field should train himself for,” Dr. Rajagopal said. 

        Handling the medical complications of various illnesses, how to start a 
palliative care service are also dealt with in the programme. [ .. 
[http://www.thehindu.com/news/cities/Thiruvananthapuram/article2591936.ece] ]" 

        - 

CANCER AID SOCIETY PALLIATIVE CARE AWARD 2011: APPLY OR NOMINATE NOW! 
[HTTP://PALLIUMINDIA.ORG/2011/10/CANCER-AID-SOCIETY-PALLIATIVE-CARE-AWARD-2011-APPLY-OR-NOMINATE-NOW/]
 

        India’s  Cancer Aid Society [http://www.canceraidsocietyindia.org/]  
(CAIDS) invites applications and nomination for the CAIDS PALLIATIVE CARE AWARD 
2011. 

        CLOSING DATE: 12 NOON (IST) 30TH NOVEMBER 2011 

         CAIDS [http://www.canceraidsocietyindia.org/]  is an Indian NGO 
working Nationwide since 1987 on Palliative Care, Advocacy, Tobacco Control, 
Cancer and Non Communicable Diseases Prevention and Control. 

        The award winner will be presented with a plaque and a prize of 
RS.100,000 in February 2012 at the 19th International Conference of the Indian 
Association of Palliative Care [http://www.iapckolkata2012.org/] , Kolkata. 

APPLY ONLINE HERE… 
[HTTPS://DOCS.GOOGLE.COM/SPREADSHEET/VIEWFORM?FORMKEY=DHFOV25DSVFARLZYQ2PZBKZNA0ZVVXC6MQ]
 

        Applications and nominations are open to: 
        * Doctors, Paramedical Staff and Social Workers 
        * with demonstrative leadership in the field of Palliative Care for the 
Cancer Patients 
        * from India, Bangladesh, Bhutan, Nepal, Pakistan, Afganistan and Sri 
Lanka 

        Application should be made  ONLINE 
[HTTPS://DOCS.GOOGLE.COM/SPREADSHEET/VIEWFORM?FORMKEY=DHFOV25DSVFARLZYQ2PZBKZNA0ZVVXC6MQ]
  along with the references and verifiable evidence (through media and 
pictures) in order to identify the leadership of the applicants or 
nominee. CLOSING DATE: 12 NOON (IST) 30TH NOVEMBER 2011 

        - 

AWARDING-WINNING LIFE BEFORE DEATH SERIES CONTINUES… 
[HTTP://PALLIUMINDIA.ORG/TAG/LIFE-BEFORE-DEATH/] 

         [http://www.lifebeforedeath.com/movie/short-films.shtml] 

        The “LIFE BEFORE DEATH” series of short movies continue to be released 
one every week. 

        They are not only very informative to the public; but also make 
powerful advocacy material for the palliative care community. 

        Here are the 7 films released in October and November: 
        * #27: Faith and Dying 
[http://palliumindia.org/2011/11/life-before-death-27-faith-dying/] 
        * #26: The D Word 
[http://palliumindia.org/2011/11/life-before-death-26-the-d-word/] 
        * #25: What is Palliative Care 
[http://palliumindia.org/2011/11/life-before-death-25-what-is-palliative-care/] 
        * #24: Together we are stronger 
[http://palliumindia.org/2011/10/life-before-death-24-together-we-are-stronger/]
 
        * #23: Ripple Effect 
[http://palliumindia.org/2011/10/life-before-death-23-ripple-effect/] 
        * #22: Opium: Sinner or Saint 
[http://palliumindia.org/2011/10/life-before-death-22-opium-sinner-or-saint/] 
        * #21: Pediatric Palliative Care 
[http://palliumindia.org/2011/10/life-before-death-21-pediatric-palliative-care/]
 

        Thank you, Mike Hill and team of Moonshine Movies and thank you, Lien 
foundation,International Association for the Study of Pain, The Mayday Fund, 
the Union for International Cancer Control and The Institute for Palliative 
Medicine at San Diego Hospice International Programs. 

        For more information and to view the entire series, visit the Life 
Before Death website… [http://www.lifebeforedeath.com/movie/short-films.shtml] 

        - 

SHOWERING LIGHT INTO DARKNESS 
[HTTP://PALLIUMINDIA.ORG/2011/10/SHOWERING-LIGHT-INTO-DARKNESS/] 

        Sometimes, when the day is bleak, and there seems to be only darkness, 
callousness and cruelty all around you, there comes a ray of sunshine. 

         Holy Angels’ School [http://www.holyangelsisc.edu.in/] , Nanthancode, 
Trivandrum brought on such a bit of light into one family’s life – a follow up 
action on our blog post ‘ What is it Like to be a 13-year-old with Cerebral 
Palsy in India? 
[http://palliumindia.org/2011/09/what-is-it-like-to-be-a-13-year-old-with-cerebral-palsy-in-india/]
 ‘ 

         

        Here’s a report on the Holy Angels’ action, from Indian Express: " 
Showering light into darkness 
[http://ibnlive.in.com/news/showering-light-into-darkness/196308-60-123.html] 
THIRUVANANTHAPURAM – Oct 25, 2011 

         [http://www.flickr.com/photos/25047883@N00/55162675/] Anyone who 
visits the 13-year-old spastic child Arun G Raj – confined to a leaky 
brick-walled room – would realise how blessed they are. So it was for the 15 
students of the Holy Angels’ School, who saw him at Panathura on Monday. 

        The students and teachers of the Holy Angels’ School had decided to 
help this teenager, who cannot walk, stand or even sit without help, after 
reading an article titled ‘ Care From a Mother’s Heart 
[http://palliumindia.org/2011/09/what-is-it-like-to-be-a-13-year-old-with-cerebral-palsy-in-india/]
 ’ published in the City Express on September 16. 

        The students, motivated by their principal Sr Linis Noronha, started a 
campaign on the ‘JOY OF GIVING’ week, collecting little donations to help Arun 
in some way or the other. They interacted with the NGO PALLIUM INDIA, to decide 
on the best way to help out Arun’s family. 

        Little acts of kindness finally heaped into a massive Rs 76,500, almost 
the amount that the building engineers said would be needed for renovating the 
little shack which belonged to Arun’s aunt, Suprabha. 

        A widow herself, Suprabha has been giving shelter to Arun and his 
mother Ajitha ever since Arun’s father died. 

        Not only will these students be able to replace the leaky roof, but the 
money can also light up the little house where Arun lives. Until now, the 
nights were jet black; for, they could not electrify the house with the leaky 
roof. Electricity might also mean that the life of little Arun can be made 
happier with music, because Arun shows a keen interest to the different sounds 
he hears. 

        The dismantling of the roof, concreting and electrification is 
estimated to cost Rs 80,000. Plastering and changing window shutters would need 
a little more money. 

        Ajitha, Suprabha and the volunteers of PALLIUM INDIA hope that the 
light lit by the youngsters would be carried on by others in the society." 

        - 

OCTOBER 2011 ISSUE OF SAHAYATRA MALAYALAM NEWSLETTER 
[HTTP://PALLIUMINDIA.ORG/2011/10/OCTOBER-2011-ISSUE-OF-SAHAYATRA-MALAYALAM-NEWSLETTER/]
 

         [http://palliumindia.org/newsletter/sahayatra] 

        We are happy to announce that the OCTOBER 2011 issue of SAHAYATRA 
[HTTP://PALLIUMINDIA.ORG/NEWSLETTER/SAHAYATRA/] , our monthly Malayalam 
newsletter, is now available for DOWNLOAD HERE… 
[http://palliumindia.org/newsletter/sahayatra/] 

        - 

AN UNEASY PEEP INTO TOMORROW 
[HTTP://PALLIUMINDIA.ORG/2011/10/AN-UNEASY-PEEP-INTO-TOMORROW/] 

         
[http://static.guim.co.uk/sys-images/Guardian/Pix/pictures/2011/10/28/Factfile_deaths_large.png]
 

        A report in The Guardian’s Datablog 
[http://www.guardian.co.uk/news/datablog/2011/oct/28/mortality-statistics-causes-death-england-wales-2010]
  brings our attention to the latest statistics on the causes of death in 
England and Wales. 

        Behind the falling death rates, maybe we can see the cheering face of 
improved health care? 

        The data is so reassuring that the article states, "

        _.. whatever we may worry about, this is one of the safest times to be 
alive, ever._" 

        But really? The statistics also shows that deaths from Dementia and 
Alzheimer’s are rising. Steeply. 

        “Safe times” to be alive for many years with dementia? 

        The article defends the current state of things, "

        _Essentially, other causes of death are going down – and people have to 
die of something!_" 

FOOD FOR THOUGHT!

        - 

ONE MONTH CERTIFICATE COURSE IN PALLIATIVE CARE AT MNJ, HYDERABAD 
[HTTP://PALLIUMINDIA.ORG/2011/10/ONE-MONTH-CERTIFICATE-COURSE-IN-PALLIATIVE-CARE-AT-MNJ-HYDERABAD-DEC2011/]
 

         [http://www.mnjiorcc.org/] An invitation from MNJ Institute of 
Oncology & Regional Cancer Centre, Hyderabad to the ONE MONTH CERTIFICATE 
COURSE IN PALLIATIVE CARE FOR DOCTORS, NURSES, SOCIAL WORKERS AND VOLUNTEERS. 

COURSE DATES: 5TH – 10TH DECEMBER 2011

        This one month course will be conducted by MNJ Institute of Oncology 
[http://www.mnjiorcc.org/] in collaboration with INCTR [http://www.inctr.org/] 
and PALLIUM INDIA. 

        This is an opportunity to learn managing chronic pain, difficult 
symptoms, difficult issues around end of life care and communication skill 
training. 

        Dr. Gillian Flyes, Ms. Ann Syme and Ms. Zahra Lalani from British 
Columbian Cancer Agency (BCCA) will be the External Faculty for the course. 

DOWNLOAD COURSE INFORMATION AND APPLICATION FORM HERE… 
[HTTP://PALLIUMINDIA.ORG/CMS/WP-CONTENT/UPLOADS/2011/10/CCPP-APPL.PDF] 

FOR MORE INFORMATION, CONTACT R VINEELA:  MNJ.PALLIATIVE@xxxxxxxxx 
[MAILTO:MNJ.PALLIATIVE@xxxxxxxxx] OR CALL 09177238901

        - 

WHAT IS AN AMUSEMENT TRAIN DOING IN A HOSPITAL? 
[HTTP://PALLIUMINDIA.ORG/2011/11/WHAT-IS-AN-AMUSEMENT-TRAIN-DOING-IN-A-HOSPITAL/]
 

        Here is a small train that whistles through the sprawling 16-acre 
cancer hospital, Cancer Centre Welfare Home & Research Institute 
[http://www.jivdayafound.org/Jivdaya/Pediatric_Oncology/CCWHRI] (CCWHRI) at 
Thakurpukur, Kolkata. 

         

        CCWHRI was created by a great visionary, the late Dr Saroj Gupta, and 
is currently managed by his sons, Mr Anjan Gupta (an architect) and Dr Arnab 
Gupta (a surgical oncologist). 

        Many may consider this train, or the fountain in the children’s ward a 
luxury, but the message that they give to anyone who walks in to the hospital 
is, " 

_“WE CARE FOR YOU AS A PERSON”_

" 

         

        People with cancer already have the disease and treatment (with all 
their psychosocial implications) to grapple with. Why must they also be in a 
grey, bleak environment? 

        Even if all hospitals do not have amusement trains and fountains, at 
least we can learn from them enough to think not only of disease and treatment 
but also of the windows and the trees? 

SIMPLY WHEELING SOMEONE OUT IN THE EVENING TO BE AMONG SOME GREENERY AND 
FLOWERS MAY DO A LOT OF GOOD TO THE HUMAN SPIRIT!

        - 

LAUGHING AT DEATH: A GREAT LESSON IN ACCEPTANCE! 
[HTTP://PALLIUMINDIA.ORG/2011/11/LAUGHING-AT-DEATH-A-GREAT-LESSON-IN-ACCEPTANCE/]
 

        Here’s another story from The Guardian, the story of a father and son 
laughing over a stroke, then cancer and eventually death! " Jason Cook: My 
dad’s death was one big joke
[http://www.guardian.co.uk/lifeandstyle/2011/oct/29/jason-cook-comedy-father] 
_Stand-up comedian Jason Cook always delved into his family life for 
inspiration, so when his father had a stroke he turned it into an award-winning 
show. Then, a year later, his dad died of cancer – but that didn’t mean the 
laughs had to stop_ 

         
[http://www.guardian.co.uk/lifeandstyle/2011/oct/29/jason-cook-comedy-father] 

        Dad was diagnosed with cancer in 2008, and one of the first things he 
said to my mum was “Well, that’s Jason’s next Edinburgh show sorted then.” He 
wasn’t far wrong. My 2007 Edinburgh Fringe comedy show, My Confessions, had 
documented his stroke and recovery and my 2008 show Joy talked about his cancer 
diagnosis and death. The truth is that my dad and I had written most of the 
show together. He was and is my inspiration. 

        My father, Tony Cook, was born in the Tyneside shipyard town of 
Hebburn, where we lived. He was a big, broad-shouldered fellow, with huge 
forearms and thick hands and the kindest eyes anyone has ever seen in a human 
being. They were eyes that always had a twinkle in them, so when you were 
talking to him you always thought that he might take you out to do something 
impish. 

        I followed Dad into the merchant navy at the age of 19. We became easy 
workmates and drinking buddies. Towards the end of his career, he became a 
consultant for the company and joined the same ship I was sailing on but was 
not a ranking officer, so I was technically senior to him on board. It never 
affected our closeness. 

READ THE FULL STORY ON THE GUARDIAN WEBSITE… 
[HTTP://WWW.GUARDIAN.CO.UK/LIFEANDSTYLE/2011/OCT/29/JASON-COOK-COMEDY-FATHER] 

" 

         Visit Jason Cook’s website for more on his work… 
[http://www.jasonlovescomedy.com/] 

        - 

NOMINATIONS FOR IAHPC BOARD OF DIRECTORS 
[HTTP://PALLIUMINDIA.ORG/2011/11/NOMINATIONS-FOR-IAHPC-BOARD-OF-DIRECTORS/] 

        A message from Liliana De Lima at IAHPC: "

         [http://www.hospicecare.com/news/11/11/nomination.html] 

        The International Association for Hospice & Palliative Care 
[http://www.hospicecare.com/] (IAHPC) is proud to announce a public call for 
nominations [http://www.hospicecare.com/news/11/11/nomination.html] to 6 seats 
in the IAHPC Board of Directors. 

        IAHPC members are invited to nominate health professionals actively 
working in hospice and palliative care with demonstrated interest in the 
development of international palliative care initiatives and issues. 

CRITERIA FOR NOMINEES

        Nominees may be located in any country, have academic backgrounds and 
must fulfill the following criteria: 

        * Have been active members of IAHPC for at least 3 (three) consecutive 
years at the time of nomination. 
        * Have demonstrated work and commitment in palliative/hospice care in 
his/her field. 
        * Currently holding or having held a position within a teaching 
hospital, university or palliative care organization. 
        * Have demonstrated willingness to participate and work in the board 
activities including working groups and task forces. 
        * Have demonstrated interest in international palliative and hospice 
care issues 
        * Be able to communicate effectively in English. 
        * Candidates must have access to the Internet and hold an active e-mail 
account. 

CRITERIA FOR NOMINATORS

        * Be an active member of IAHPC at the time of nomination 

NOMINATION RULES

        * Nominators may nominate one candidate only. 
        * Nominations have to be done by submitting a nomination form. To 
request a form contact Ms. Ana Restrepo at  admin@xxxxxxxxx 
[mailto:admin@xxxxxxxxx] 
        * Please submit a copy of a current CV of the nominee 
        * Deadline for nominations is NOVEMBER 30, 2011. 

        We invite members to participate in this important process by 
nominating a candidate. Individuals who are not members and wish to also 
participate, may join through our website by  clicking here 
[http://www.iahpcnews.com/auto/link.php?M=1924&N=51&L=11&F=H] . 

        After the nomination, candidates may be contacted by the governance 
committee for additional information. 

        The term of the new members will begin on January 1, 2012 and will end 
December 31, 2014. The new directors will be elected by a vote of the current 
Directors and will be announced in December 2011. 

        We look forward to your participation in this process and to the 
nomination of candidates. 

        Governance Committee, IAHPC Board of Directors
( Original announcement [http://www.hospicecare.com/news/11/11/nomination.html] 
)" 

        - 

URGENT: PEDIATRIC PALLIATIVE CARE PHYSICIAN NEEDED IN DELHI 
[HTTP://PALLIUMINDIA.ORG/2011/11/URGENT-PEDIATRIC-PALLIATIVE-CARE-PHYSICIAN-NEEDED-IN-DELHI/]
 

         

        Ms Poonam Bagai, chairman of Cankids [http://cankidsindia.org/] , 
writes from Delhi calling for a pediatric palliative care physician for a 
PROJECT ASSIGNMENT OF 3-6 MONTHS. "

         

        We have a place for them to stay, and language will not be a problem 
because the rest of the team is Hindi-speaking. 

        Cankids can pay RS. 45,000 A MONTH and if someone is willing to stay 
longer, that is welcome too. 

        Please see the attached information 
[http://palliumindia.org/cms/wp-content/uploads/2011/11/cankidsppcp2011.pdf] 
for details and please transmit this to anyone you think may be interested. 

        _CHILDREN ARE IN PAIN!  _" 
        * DOWNLOAD A PDF WITH FULL INFORMATION… 
[HTTP://PALLIUMINDIA.ORG/CMS/WP-CONTENT/UPLOADS/2011/11/CANKIDSPPCP2011.PDF] 

        - 

WHERE IS THE BYSTANDER? 
[HTTP://PALLIUMINDIA.ORG/2011/11/WHERE-IS-THE-BYSTANDER/] 

        Do you know what a bystander is? 

        It is an Indian phenomenon. 

        A relative who endlessly stands by anyone who is admitted to hospital. 
By definition, he/she is not expected to sit down, let alone lie down. Most 
hospitals will not permit more than one of the species to be with the patient, 
and that person will always be busy. 

        This dreadful title is another way of depersonalising a human being, 
and the medical system is hardly aware of the implied insult. 

         Nazeem Beegum [http://nazeembeegum.blogspot.com/] , a Dubai-based 
journalist, posted the following on Facebook [http://facebook.com/nazeem.beegum 
]  – an excerpt from a manuscript: "

        “Where is Sainaba’s bystander?” 

        Each time nurses used the word bystander, I wished them to address me 
as Sainaba’s daughter. 

        But they never cared for my feelings. 

        And why should they? They are seeing hundreds of bystanders each 
day.But why dont they at least think they too will be called as a bystander by 
someone, someday? 

        They repeatedly called me bystander before the doctor even though thay 
made friendship with me. I wondered why they want to punish me for nothing. 

        After all, how long I can be called in the presence of my mother as her 
daughter! 

        If I was in my usual self, I would have picked up a quarrel with them 
for not showing mercy towards all those bystanders who care their dear ones. 

        But as the situation was not meant for creating ugly situations in 
front of an ailing mother, I gulped down all my frustration without a complaint 
and rushed to them waiting for their next word like a  lifeless rock. 

        I STILL DONT UNDERSTAND WHY OUR HOSPITALS CALL A PERSON WHO CARES THEIR 
DEAR ONES AS BYSTANDER? WHY DONT THEY USE THE WORD CARER INSTEAD OF BYSTANDER?" 

         

WILL SOMEONE ANSWER, PLEASE? NAZEEM IS WAITING.

        _Follow Nazeem on her blog [http://nazeembeegum.blogspot.com/] ,  
Twitter @nancynazeem [http://twitter.com/nancynazeem] & Facebook 
[http://facebook.com/nazeem.beegum] _ 

        - 

REMINDER: IAPC 2012 CONFERENCE IN KOLKATA 
[HTTP://PALLIUMINDIA.ORG/2011/11/REMINDER-IAPC-2012-CONFERENCE-IN-KOLKATA/] 

NEW:  VIEW FLYER 
[HTTP://PALLIUMINDIA.ORG/CMS/WP-CONTENT/UPLOADS/2011/11/IAPC-2011-KOLKATA.GIF]  
OR  DOWNLOAD PDF 
[HTTP://PALLIUMINDIA.ORG/CMS/WP-CONTENT/UPLOADS/2011/11/IAPC-2011-KOLKATA.PDF] 

         [http://www.iapckolkata2012.org/] 

FROM DR. NAGESH SIMHA, PRESIDENT, INDIAN ASSOCIATION OF PALLIATIVE CARE 
[HTTP://WWW.PALLIATIVECARE.IN/INDEX.PHP] :

"

        I am delighted to inform you that the 19TH INTERNATIONAL CONFERENCE OF 
THE IAPC [HTTP://WWW.PALLIATIVECARE.IN/CONFERENCES.PHP] will be held in 
Kolkata, 10-12 February 2012. 

        The theme is “EDUCATION, TRAINING AND RESEARCH IN PALLIATIVE CARE”. 
        * Abstract submission deadline: 31 NOVEMBER 2011 

         Registration [http://www.iapckolkata2012.org/registration.html] fees: 
        * Doctors: Member, INR 2,000 / Non-member, INR 3,000 
        * Post graduates: INR 1,500 
        * Nurses & Volunteers: INR 1,000 
        * Spouse/children: INR 1,500 

         FULL DETAILS & REGISTRATION FORMS ARE AVAILABLE AT THE IAPC KOLKATA 
2012 WEBSITE… [HTTP://WWW.IAPCKOLKATA2012.ORG/] " 

        - 

WHAT’S COMMON BETWEEN PALLIATIVE CARE IN KERALA AND MALAYSIA? 
[HTTP://PALLIUMINDIA.ORG/2011/11/WHATS-COMMON-BETWEEN-PALLIATIVE-CARE-IN-KERALA-AND-MALAYSIA/]
 

         
[HTTP://PALLIUMINDIA.ORG/CMS/WP-CONTENT/UPLOADS/2011/11/KERALA-MALAYSIA.GIF] 

        PALLIUM INDIA had the privilege of attending a planning meeting 
organized by the Division of Palliative Care of Malaysia’s Ministry of Health 
[http://www.moh.gov.my/?locale=en] in Kuala Lumpur, 8-9 November 2011. 

         

        The division is headed by DR RICHARD LIM 
[HTTP://APHC2011.ORG/INDEX.PHP/SPEAKERS/73-DR-RICHARD-LIM-BOON-LEONG] , who, in 
the 1990s, had come as a young doctor to spend time with palliative care 
workers in Kerala. 

        The partnership between Government and Non-Government Organizations 
adopted by Kerala’s palliative care policy came up in discussion at the 
meeting. 

         

        With the blessings of DR AZMI SHAPIE, the Health Ministry’s Director of 
Medical Development, the meeting decided to develop the framework for an action 
plan for Malaysia. 

        The meeting, as well as the progress in Malaysia would offer useful 
lessons for us in India, especially considering that even after a quarter of 
century of palliative care in India: 99% OF OUR POPULATION HAS NO ACCESS to it. 

MALAYSIA IS WAY AHEAD OF INDIA IN ACCESS TO PALLIATIVE CARE, THOUGH THE STATE 
OF KERALA MIGHT BE AN EXCEPTION.

        RELATED: Malaysian MOH ‘ Palliative Care Services Operational Policy 
[http://www.moh.gov.my/images/gallery/Polisi/PALLIATIVE_CARE.pdf] ‘ (pdf) & Oct 
2010: Malaysia’s Pain Management Guidelines 
[http://palliumindia.org/2010/10/malaysias-pain-management-guidelines/] 

        - 

PARTING SHOT

         [http://www.flickr.com/photos/43017881@N00/95516793/] 

        Would you mind very much if we end this newsletter with a quote that is 
not strictly palliative care material? 

        Well, why not? Is there any law which states that palliative care 
people must always talk palliative care? 

        We got the following gem from Dr Shakti Kumar Gupta of the National 
Initiative in Patient Safety (NIPS). " 

_“WHEN SOMEONE PAYS YOU A COMPLIMENT, NEVER INTERRUPT. WAIT TILL THE PERSON 
FINISHES, SMILE AND SAY, “TELL ME MORE”._

"

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  • » Pallium India Newsletter: November 2011 - Pallium India Newsletter