[net-gold] MEDICAL: RESEARCH : BIOLOGY: GENETICS : RESEARCH: ETHICS : NATIVE AMERICANS: Informed Consent and the Ethics of DNA Research
- From: "David P. Dillard" <jwne@xxxxxxxxxx>
- To: Net-Gold <Net-Gold@xxxxxxxxxxxxxxx>, Temple University Net-Gold Archive <net-gold@xxxxxxxxxxxxxxxxxxx>, Temple Gold Discussion Group <TEMPLE-GOLD@xxxxxxxxxxxxxxxxxxx>, Net-Gold <net-gold@xxxxxxxxxxxxxxxx>, Sean Grigsby <myarchives1@xxxxxxxxxxxxxxx>, Educator Gold <Educator-Gold@xxxxxxxxxxxxxxx>, Educator Gold <Educator-Gold@xxxxxxxxxxxxxxxx>, K12AdminLIFE <K12AdminLIFE@xxxxxxxxxxxxxxx>, Net-Platinum <net-platinum@xxxxxxxxxxxxxxx>, NetGold <netgold@xxxxxxxxxxxxxxx>, "Net-Gold @ Nabble" <ml-node+3172864-337556105@xxxxxxxxxxxxx>, K-12ADMINLIFE <K12ADMIN@xxxxxxxxxxxxxxxxxxx>, MediaMentor <mediamentor@xxxxxxxxxxxxxxx>, Digital Divide Diversity MLS <mls-digitaldivide@xxxxxxxxxxxxxxx>, net-gold@xxxxxxxxxxxxx
- Date: Sun, 25 Apr 2010 00:33:00 -0400 (EDT)
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MEDICAL: RESEARCH :
BIOLOGY: GENETICS :
RESEARCH: ETHICS :
NATIVE AMERICANS:
Informed Consent and the Ethics of DNA Research
Informed Consent and the Ethics of DNA Research
By AMY HARMON
Published: April 23, 2010
Week in Review
New York Times
<http://www.nytimes.com/2010/04/25/weekinreview/25harmon.html>
The cultural gap between the impoverished Havasupai Indians who view their
blood as sacred and the Arizona State University researchers who
helicoptered in to their Grand Canyon home to collect it was at the heart
of a lawsuit over the scope of a genetic study that ended last week with a
settlement for the tribe.
But the case, scientists and bioethicists said, serves as a cautionary
tale about the equally significant gap between scientists and all research
subjects, who often seem to hail from different cultures even when the
surface differences are less apparent.
As troubling questions, some involving other lawsuits, have surfaced
recently among a range of research subjects who have learned that their
genetic material is being used in ways they werent consulted about,
scientists are debating how to better apply the principle of informed
consent to large-scale genetic research. At stake, they say, is the
success of such research, which relies on voluntary participation by
increasingly large numbers of human subjects.
Some have proposed an international tribunal akin to the Helsinki human
rights agreement, which would lay out the ethical obligations to research
participants. Others suggest staying in touch with subjects so they can be
consulted on new projects and because under current practices they tend
to learn of breakthroughs based on their own DNA only if they become close
readers of scientific journals.
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The complete article may be read at the URL above.
Sincerely,
David Dillard
Temple University
(215) 204 - 4584
jwne@xxxxxxxxxx
<http://daviddillard.businesscard2.com>
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