[bct] Re: Hello everyone

Mary,
Actually, to answer your first question, my seizures are random, and there are 
no symptoms or cues to let me know that one is about to happen.  This is 
frustrating, and it is also scary.  One incident, in particular, comes to mind. 
 I was in choir in high school all four years.  Each year, the choir and 
orchestra would put on a concert for the general public to come and see  It was 
always very cool for me, because the orchestra would accompany the choir 
sometimes, instead of just your traditional piano accompaniment.  One of the 
pieces I remember the most is the Hallelujah Chorus.  The choir stood on risers 
on the stage and the orchestra was in the orchestra pit.  I, being a soprano, 
was on the top most riser.  I loved standing there because it was always so 
exhilarating to be that high up, and to know that my voice, along with everyone 
else's would carry to all of those people listening.  Well, during the climax 
of the piece, as the music and voices were crescendoing, I fell off of the back 
of the riser and apparently fell into one of several  mics that had been set up 
for recording purposes.  Needless to say, that concert, as well as that piece 
have a particularly strong, if not painful memory for me.  The next thing I 
knew, I was in the hospital with a concussion, and no longer singing, 
"Hallelujah, ... and He shall reign for ever and ever ..."  I was singing, " 
... There shall be pain for ever and ever ..."  Of course, it healed, and 
luckily, nothing worse happened, but I do have a copy of the recording, up to 
that point.  After that, the rest of the concert was called off.  I felt really 
horrible about that, because we all had been working very hard all year to make 
it happen.  Everyone understood though, but it didn't change things. My senior 
year things went fine, although, taking no chances, my choir director insisted 
I stand on the bottom riser, so that if I did fall back, I would fall into 
someone else instead of down and crash into equipment and solid wood.

Hope
  ----- Original Message ----- 
  From: Mary Emerson 
  To: blindcooltech@xxxxxxxxxxxxx 
  Sent: Wednesday, November 30, 2005 3:48 PM
  Subject: [bct] Re: Hello everyone


  Hope,

  Those seizures sound like they're really scary. Do you know when one is about 
to happen, or is it just sudden and random? Jake, if your room mate has one, 
are you able to get help? 

  Concerned and wanting to know more, so I for one wouldn't mind if this 
discussion continues on this list. It's sort of like learning about diabetics; 
I had a college room mate who was diabetic, and my boss at the office was also. 
Between the two of them I got really interested in learning more about it. It's 
a shame people get stuck with these sorts of conditions; there is a lot of 
misunderstanding about them. I've known people who had epilepsy and they always 
had to deal with misunderstanding due to ignorance and fear. 

  Mary


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