hibm: HIBM List

Hereditary Inclusion Body Myopathy (HIBM) or Distal Myopathy with Rimmed Vacuoles (DMRV) is a young adult onset muscle wasting disease. It is a very rare disease that affects possibly <1000 people worldwide. This email list is for discussion amongst patient support group (e.g. ARM) board members regarding expediting availability of funds for meritorious research towards development of therapy.

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